Miracle #1...
Today Leah had a doctor's appointment with her orthopedic surgeon. She has not had x-rays for 3 months on her hips, so today they took some. Don't get too excited, her hip displacia is not cured, but there has been significant improvement. This is the first time since she has had the brace that there has been any change in her hip at all. It looks really good! The doctor said that he does not think that she will have to have surgery anymore. It was not a promise, but still. She still has to wear her brace to bed, but that is it. That means no more guilt for me that I don't always have her wear it 16-18 hours a day! I am really excited about this. Honestly, I did not think that the brace was going to work at all. I really thought that she was going to wear it all that time and still have to have the surgery. I thought that she would be really physically delayed, have funky-crazy flexible legs that won't go together and miss out on all the cute outfits all for nothing! I guess I was wrong...THANKGOODNESS!!!
Miracle #2...
Many of you know that a couple months ago I was diagnosed with Crohn's Disease. Crohn's is an incurable, auto-immune disorder that attacks anywhere from the esophagus through the rectum. For a couple of weeks I was really upset about the diagnosis. I wondered how I could have this. Most people who have it seem so sickly. Mostly, I could not stop wondering how bad it might get someday. Lately, I don't think about it at all. I feel fine, other than the occasional achy joints, but no big deal.
Recently, I took a new blood test that is usually pretty accurate at distinguishing Crohn's disease from some other ones. My gastroendonologist called today and told me that the test came out NEGATIVE for Crohn's. Interesting, especially since some biopsies revealed that I had it and I have a lot of the symptoms, some of them for 14 years. She told me that she is not going to label be with Crohn's now, because the label will never go away on my medical records.
I really see this as a miracle. Since I had my colonoscopy and endoscopy, many of my symptoms have been in remission. Actually, everything except for some minor, annoying joint pain.
Who knows if I have it or not? I guess that it really doesn't matter when it comes down to it. I feel good. It can't kill you, just make life uncomfortable. Lately though, I am comfortable and happy. I feel like this test result was some sort of little miracle...THANKGOODNESS!


10 comments:
All of those things are so awesome!!!! I know Leah will love having the braces off during her waking hours and that will be such a relief to you. I had no idea you had been diagnosed with Crohns! A close friend of mine has it and it is not fun! I am so glad you have tested negative for it. We will have to talk more about it the next time I see you. Thanks again for helping so much with Cin's shower :)
Wow, that is fantastic news for both of you!! Glad to hear you have been feeling better and Leah is moving around!
Jill,
YAY for baby Leah! Chrones, I had no idea you were dealing with that! I remember we talked about some auto-immune tests but I didn't know about the chrones possibility, that is so stressful to carry, along with the stress of leah's hips. (sigh of relief) I am so happy for both of you!
Jill this is so exciting, I bet you are just jumping with Joy. First the storm and the the calm. I am so glad that life is going so well for you righ now, you truly deserve a break
To Jill and Jay - A really good day for all of you. SO glad that the tests are getting better and better. Love to all 5 of you ! Mom
I couldn't be more excited for both the news. Congrats and hope you are doing well!!! Plus Leah looks adorable and I am so happy for you that she can wear outfits now!!!
That is great news about Leah and for you. I am sorry you have been feeling yucky and dealing with all of that! If you need anything, call me! :-)
Hip Hip Horray! I'm so happy for Leah and for you!!! What a load off! I know you've been so frustrated, and I'm so glad you finally have some answers!
That is so great!!! I love hearing about everyday miracles. I am so happy for you, and Leah.
I didn't know you knew the Dan's. Lani is so fun. Well, I think I'm getting big, but everyone keeps telling me I'm not, but knowing friends they are probably just being nice. I think I'll have to pull out the maternity clothes here in the next little while... I'm going to try to post a "bump" picture soon, so stay tuned...
We'll have to get together soon!! We miss you.
Sara
I love miracles! YOu deserve them all! Let's do a park day soon!
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